The Month of May

The month of May is busy.

Joey has been doing really good since we got back from Costa Rica. He is sitting independently for an average of 5 minutes. His trunk control and head control is much better. He is also using his arms a lot more now. He can grip and release on command. Also again his eyesight has improved. He really watches tv now. It is awesome.

On Thursday I have a couple very important appt's. Joey will get botox in his calf's to paralyze the muscle so we can stretch his muscle to get his feet set in a more natural position. His feet point because of his tone (muscle contractions). Even though we will have topical pain medicine on the area were the injections will be, you know its still going to hurt him. My poor baby. About 2 weeks after this procedure he will get serial casted. Meaning we will put casts on both legs (like if he broke his legs). He will have to wear them for 4 weeks. The first few days of this he will be miserable. I am not looking forward to this. The only thing that keeps me pushing forward with this procedure is that his feet will no longer be deformed. UGHHHHHHHHH!

On the same day I go for Joey's IEP meeting. This meeting, for those of you who don't know, is a meeting with the school to set his plan for schooling and therapy. Joey is entering kindergarten. Why I am nervous about it is because I am going to be asking for several things that the school district doesn't give easily. It will be a fight. I just open it goes smoothly and we can all come to an agreement without to much hassle.

Then on memorial weekend we are going camping with our friends for a little rest and relaxation and a bit of swimming. This is an annual trip. Unfortunately because Joey will have his casts on he will not be able to swim. And boy does he like to swim.

Then for all you who live in Southern California near us, I am having a garage sale. All the monies raised I am going to put in Joey's acct. I need to raise money so that Joey can begin HBOT ($5000) and so that I can buy him a gait trainer/walker ($4100). The garage sale will be June 5th and 6th. If anyone has any garage sale items they would like to donate I will come around with a uhaul that week before and pick up your items. I could also us the help early in the morning if you would be interested in volunteering. We will also be selling coffee in the morning and lemonade and cookies in the afternoon.

I am asking for everyone prayers on Thursday during our appt's.

Thank you to everyone for being so supportive.