Thursday, December 25, 2008

Joey's Christmas Present to his Mommy and Daddy

Two Christmas presents. One for Mommy and one for Daddy. Today when mommy and daddy were feeding me, they brought the sippy cup toward my mouth and I SAW IT and opened my mouth for a drink. This time instead of biting it to get the water, I used my lips and mouth to suck on the sippy cup. I was able to suck and continue drinking at the same time. Mommy and Daddy had tears in their eyes. 

Merry Christmas!

Wednesday, December 24, 2008

Becoming a Scrooge!

Over the years I have become a scrooge. The planning and shopping and wrapping and cooking it's just to much. We celebrate Hanukkah with my family. A Hanukkah party with my moms side and then another with my dads side. We also celebrate X-mas with my husbands side of the family. So things are busy.

The kids have been given homework on their vacation, and not just a little, but BIG projects. I HATE homework. We leave on New Years Eve to go camping. Yeah! Camping is very relaxing and a great way to start of the new year. 

Amongst all the holiday hoopla, I am still taking Joey to his therapy. Twice a week down near LAX we go. He just began his tomatis therapy again. This seems to really calm him and center him. We are not doing any other alternative therapies (ie: HBOT, NeuroSuit, Biofeedback) for a while. I am working on getting Joey to China for Stem Cell Therapy. I am also continuing my research on other alternative therapies. As far as 'How Joey is doing', he made a lot of improvements after his last NeuroSuit session in November and has now plateaued. Which is OK. He is loose and happy and is finally gaining weight after 2 years. Hopefully in March his feeding tube will come out. 

Happy Holiday and Happy New Years to everyone. May 2009 be the best year ever.

Friday, December 12, 2008

My Therapies

I get asked all the time about Joey's therapies. I added a sidebar that lists the therapies Joey has done and is currently doing. 

I am currently researching Stem Cell therapy for Joey. Many kids with the same injury as Joey has had this procedure and has improved greatly. SCT is where they take stem cells either from a fetus, umbilical cord or born marrow and transplant into Joey through IV. This helps create new cells in Joeys brain. I have been researching for a few months now. The therapy cost more than I have ever spent on therapy (approx. $15,000-$35,000, no including travel expenses). It is an amazing therapy and I believe it is worth every cent. Although I still have a couple more months worth of research to do.

Hope everyone has a very Happy and Healthy Holiday.