De-stressing!!! WHAT, really, what was I thinking.
School has started and we are 1 1/2 weeks into in. Joey is doing great. They are still getting use to him and he is still getting use to them, but things are going good. Next week I plan on visiting and talking to his therapist and the teacher about the amount of time he is in his wheelchair. I think they have him in it to much. That WILL change.
Joey has started a new therapy clinic this week. It is just physical therapy. He has a new therapist. I know it will take a few weeks to get use to each other, but I'm inpatient and can't wait. He will go 2x a week for an hour. We are no longer going to the NAPA Center on a regular bases because of school and the drive. I already miss that place. It makes me nervous that Joey will regress not going to therapist that know what he needs. I am going to try and take him there on days off of school and he will also continue doing intensive therapy there when we can.
I told myself that I was going to give myself and Joey a break on doing extra therapies. I thought that by giving us a break that it would give me a chance to de-stress a little and relax. WRONG! All I can think about is what other therapies I should put Joey in. What therapies does he need to help him? My mind is nervous that by taking a break Joey will regress. I continuously say to myself, "As long as he doesn't regress I will be happy", however it is so hard to keep convincing myself of that. So in turn, I am not de-stressing, I think I have only made it worse. With that being said, I am looking into Occupational therapy and massage therapy for Joey.
Another thing I struggle with is his progress and other kids progress. I know and boy do I know that ALL kids are different. I also know that I should be happy that Joey can do this or that because other kids can't, but deep down inside I'm not 100% happy. I want Joey do be able to see and track. I want him to be able to reach out and use his arms to read and play games on his ipad and feed himself and point to things and so on and so on. I just want the best quality of life for him.
OK, I'm done being depressed. I just had to get it out.
Now on to the things Joey CAN do. He can sit for an average of 3.5 minutes, but has sat for 10-18 minutes over a dozen times. He still eats like a horse and he walks great in his gait trainer. His eyesight has improved dramatically. I am going to take him to the Center for the Partial Blind to get therapy for his vision. Oh and not to forget, but Joey has the best smiles and the best laughs.
