I feel like an Energizer bunny lately. We keep going and going and going.
Monday and Wednesday, Joey went back to school, then had therapy, then off to work for me.
Tuesday, Joey had a Neurologist appt. This was a new doctor we went to and he is great. He recommends that Joey receive more therapy. He is writing a letter to his pediatrician and to the school district requesting more therapy. He doesn't think Joey needs any meds and is doing great.
Thursday, Joey had two doctors appt's. First we visited his Orthopaedic doctor. I was very nervous about this appt. because he was going to have an xray done on his hips and back. It is very common for kids like Joey to have scoliosis and for their hips to be out. Well good news, the doctor said Joey was PERFECT. His hips are in socket and his back is pin straight. Yeah! Yeah! Yeah! Then we discussed new AFO's for Joey. For those of you that don't know, these are braces that keeps his tendon's, ligaments and muscles in his calf's lengthened. Well the last pair he had he hated, so the idea is now to get him either botox or phenol injections first then get new AFO's for him. His doctor doesn't do these injections, so I now have to contact another Ortho in UCLA who specializes in this for CP kids. After this doctor appt. Joey had therapy. He did great in therapy. He is really starting to feel his arms and be aware that he has arms again. WHOO HOO! Then to his next doctors appt. I took him to a Neuro Optometrist. He did some tests to see how well he can see and which eyes and which parts of his eyes he is seeing with. It was determined that he sees only with his peripheral vision. However his right eye is focusing a lot, which means he does have a bit of normal vision in his right eye. So Thursday's doctors appt's were all really good.
I guess this means Stem Cell Therapy WORKED!. He is regaining his eyesight, he has better head and trunk control and he is starting to use his arms more. AND it has only been 3 1/2 mos since we have been home. The research and doctors say we will see results up to 6 mos after the treatment. I can't wait for April when I am going to take Joey to Costa Rica for another round of SCT.
We then decided to have a little fun and take the kids and Grandma Janet to Disneyland. Jessica and Jack decorated cookies, Joey ate everything in sight and we then concurred all the rides. It was a lot of fun. All the Christmas lights and decorations were out. Everything was very festive. Today, Saturday, I took a spa day with friends and got my hair done. Jeremy decorated the inside of our house. we now have a fire in the fireplace and we are eating sundaes.
Ok that's all for now. Please keep up the prayers and thoughts for more improvements from the SCT.
Thank you all for thinking of us.
![](http://i261.photobucket.com/albums/ii68/jaimeemartinez/Blog%20Designs/juliesiggiecopy.jpg)
2 comments:
All we can say is AWESOME update!!!!
Cousin Gayle
just happened to stumble upon this when googling something, and let me say..this is truly touching <3
joey you rock my world!
Post a Comment