We are coming to the end of our 3 week intensive NeuroSuit and Tomatis sessions. Joey has been doing fantastic.
It is always kind of sad to finish these sessions. We have meet great people here. It is always so comfortable to hang out with others that understand your situation. Our discussions are usually about wheelchairs and drooling and feedings, if our kids are tight or loose today. We talk about how crazy our lives our and about the weather. These are just normal discussions. Nothing out of the ordinary or unusual. We joke about how jacked-up our kids our (our injured and typical kids). We laugh and cry. It is just a great place to be.
The therapists understand us and our kids. They work great with them. They know when our kids are fake crying or really need a break. They talk to them like if our kids were typical. Our kids respond to them like typical kids. So that brings me to "What is typical and not typical", OK, my kid can't walk or talk or feed himself, but he sure does understand and throws tantrums like a typical kid.
OK, anyways more about Joey. I took Joey to Disneyland with one of his therapist Kelly and her son Blake, and a friend Pam who is here at the center with her daughter Mackenzie. We had a great time. Joey went on tons of rides including the Matterhorn. That's his favorite ride. This was the best time I have had with Joey alone in a long long time. We spent quality mommy and son time. Then we had a sleepover and Makenzie's condo on the beach. Pam and I stayed up late and had pizza and buffalo wings and talked talked talked. Boy am I going to miss her when she leaves.
Joey has responded great with all the therapy over the last 3 weeks. The one thing I really noticed over the last few weeks is that Joey is NOT grinding his teeth anymore. Not once have I heard him. This has been a big thing. Joey has grinded his teeth down to nubs. His body is so much looser. He is sitting much better and for longer. His head control is so much better, close to normal.
Our next therapy adventure is to Oceanside in November. We will be staying for 12 days. Joey will be doing Sensory learning. This is listening, motion and lights. Then we will finish the 30 day program at home. Then we will take a break through the holidays and start 2 months of HBOT in January and then do another NeuroSuit session in May. WOW, I'm tired just think about it.
Thank you everyone for your continued prayers and thoughts.
Love Always
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