Fighting Joey: The World We Live In

Sunday, August 23, 2009

The World We Live In

The world we live in, not your world, but my world. The world I am talking about where special needs kids and disabled people are normal.

The world where no one is looked at with a crooked smile or squinted eyes or with a look on there face of sympathy.

A world where you are not explaining to everyone the difficulties of your life or trying to make other people understand and feel better about your situation.

The world where only we can make jokes about our lives and it be funny to only us, were you might take offense.

The world where feeding tubes, drooling, falling, slumping over, changing diapers, special diets, wheelchairs and walkers, are normal and not even looked at twice.

Where helping another is just second nature. Where the smallest physical or cognitive improvement is like winning the lottery. Where you take nothing for granted. Where you appreciate your abilities more and more each day.

A world where your disability is not a bad thing.

In this world you don't compare what one can do and the other can't. You celebrate what everyone is capable of doing all the time.

It is not a bad world or a world of unhappiness.

Our world is not worse than your world.

Our world is just different then your world and unless you have lived in both worlds you would NEVER understand. You can only imagine.

The world where I pray you would NEVER have to be a part of. The World I Live In.

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NeuroSuit Therapy

NeuroSuit Therapy is an intensive therapy program. You can read more about them by clicking the link above.

Accomplishments: Joey has gained his head and trunk control, learned to sit, crawl, bare weight on his arms and legs. He began talking during NeuroSuit Therapy. He has made more progress during this therapy then any other Physical or Occupational therapy he has done.

Physical and Occupational Therapy

I take Joey to the NAPA Center in Los Angeles 2x/wk, 2 hrs each time. The NAPA Center is also where Joey does his NeuroSuit Therapy. The therapist here are the best. They keep him stretched, loosened and continue teaching him how to work his body.

Tomatis Therapy

This therapy is a listening therapy. Classical music is played at different decipels to train his ear muscles to contract and expand with different sounds.

Accomplisments: He became more grounded, more centered. His eyes focus more and he is much more relaxed. His fime motor skills have also improved.

This is a home program specifically designed for Joey. You can click on the click above to read more about them. This program allows me to work with Joey at home. It compliments the therapy done at the NAPA Center.

Equestrian Therapy

Horse Back Riding. Accomplishments: He has gained incredible trunk control. Click the link for more information.

HBOT (Hyperbaric Oxygen Therapy)

This is an hour session where Joey is put in a chamber that supplies him 100% oxygen under pressure. The oxygen penetrates deep into his major organs which increases blood supply. The link will give you more information on the center I take him to.

Accomplishments: Lessen his tone. He has regained his eyesight somewhat. He also has improved cognitively.

Please feel free to contact me if you would like more information on the therapies.

Cranial Sacral Therapy

This is appro. a 20-45 minute therapy. The best way for me to describe it is it is like chiropractic, nothing is being cracked. The doctor is adjusting your body to get the spinal fluid moving freely through the spinal cord to the brain and to unclog any blocks due to the injury.

Stem Cell Therapy

Joey underwent stem cell therapy in China in August 2009. He received 6 injections. 2 IV and 4 Spinal. You can read all about the therapy on Joey's blog or click the title link for information on the company we went through.

Accupressure

Electric Wave Therapy

Feeding Therapy

Massage Therapy