Side Effects to Stem Cell Therapy

Joey has had 4 Stem Cell injections so far. He still has 2 more next week and then he is done and we come home.

I have had many people ask what type of side effects could Joey experience from the procedures. Well during all my research, no one had any negative side effects to report. I still don't have any negative side effects to report either. 

Amongst all the people here we have agreed that there are side effects. 

1) Everyones appetite has increased (including non patients, LOL!). Joey eats 3x the amount of breakfast he normally eats and then continues to eat every 2 hours after that. He is going to gain 10lbs from this trip. 

2) Another side effect is after the injections all the patients seem to have increased energy. No one can sleep that night after the injection. So that keeps the rest of us awake. We then play Ping Pong throughout the night.

3) Also after the spinals, they have sore backs. Nothing Motrin can't cure.

Well that's all to report today.

WHATEVER IT TAKES, NO MATTER WHAT!

Update After Spinal

Playing the Wii with Grandma and Braden

Back from his spinal.

Monkeying around.

Standing around

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Joey did really good yesterday after his spinal. He did much better than the first time. They gave him more drugs to knock him out during the procedure, so he slept longer after. I then gave him some Valium after 4 hours, but I don't think I gave him enough, because he didn't relax at all.  

He is being such a good boy during this whole trip. He has therapy today then we are going shopping tomorrow and an IV injection tomorrow afternoon. Then therapy on Saturday and a day off to shop and hang out on Sunday.

We only have 12 more days to go and then back to the grind.

Thanks to everyone for all your thoughts and prayers.

Here are some pictures of our trip. More pics and videos are on www.dropshots.com/fightinjoey

3rd Injection Done

Today Joey had his 3rd injection. This one was a spinal. He is doing really great. Still waking up from the procedure. 

The last couple days have been slow. Yesterday we were stuck inside due to a small storm, however, we were able to go to dinner.  Today we were also stuck inside because of the injection, Joey can't go out. I got a small stomach bug, nothing to bad. Joey has been working hard at his therapy and me and my mom have been going a little stir crazy.

We have meet a lot of great people and have heard a lot of amazing stories. WOW, stem cells really do work. Joey has had some small improvements already. Over the next six months is when we will really see what these stem cells have done for Joey. I'm very excited and nervous to see what they bring.

Jeremy, Jessica and Jack are all doing fine at home. My in-laws and step mom and dad have be invaluable to our family during our adventure. A big hug and kiss and thank you goes out to them.

Also a big HUGE thank you to my mom who has come on this adventure with me. I couldn't have done it without her.

Whatever it takes, No matter what! 

Our 2nd Week's Schedule

Today we had a day off from the doctors and therapist and treatment altogether. So we took a trip to Downtown Qingdao. We went to the Polar Express (kind of like a Sea World). It was super hot, but fun. We then drove around downtown Qingdao and had the best dinner buffet I have ever had. Our interpreter Michael and friends Aaron and Braden went with us. We had a fun day. Tomorrow we start a new week.

Our week is similar to last, except we have therapy all day on Monday and a spinal on Wednesday. He also has an IV injection on Friday, but that is not until the afternoon, so we are going to go back downtown to do a little shopping.

I think Grandma Marleen and Joey are really bonding here. He sits so quietly on her lap all the time.

Overall the trip is good, no complaints. I would do it again.

Joey's 1st Lumbar Injection

Joey and his new friend Braden

First I have to say Joey has been great this whole trip. He hardly fusses and he will sit in his chair and just hang out for a long time.

Yesterday (Friday for us) Joey had his first lumbar injection. He was not allowed to eat or drink for 6 hrs before and 4 hours after. He also had to stay on his back for 6 hours after. That was the tough part. The nurses took him in at 3:30 and he was done by 3:50. As he was waking up from the procedure he was talking up a storm (yep it runs in the family). He stayed calm for about 2 hrs (he was wide awake but calm) after. Then he got tired of laying on his back and began to get really fussy, with 4 hours of bed rest to go. It took the Dr. about an hour later to bring Joey some Valium. When they inject the Valium it burns and hurts so of course Joey screamed, but as soon as it was in he was fine. He literally knock out in 20 seconds, but that only lasted for about 3 minutes and then he was wide awake again. So to say the least the Valium didn't really work. I had to lay with him the rest of the time. My poor achy back. Joey didn't get sick or have any issues with the procedure.  So all in all the procedure wasn't to bad. I'm not sure of our schedule for next week, but Joey will have 1 or 2 more lumbars.

Now we pray that the stem cells hit the parts of the brain that need healing. Go Stem Cells Go!

Today, Saturday we are going to go down to Century Park where they held the Olympic ceremonies. We are also going to the Holiday Inn (fancy hotel here) to have some American food. We can only eat so much Chinese food.

Well that's it for today. Please send some extra prayers out to Joey's friend Santana and his mommy who are in the hospital again. Hurry up and get better Santana. We love you guys.

First Day of Therapy

Today was Joey's first day of therapy. Boy did he need it. He has been so tight. He is much looser now, but still has a way to go. He did PT  twice, standing therapy, Electric Wave therapy and Acupressure today. I think by the end of the week he will be back to normal. 

We went to Pizza Hut for dinner. This Pizza Hut is not like home. It is a fancy restaurant. They service you and the pizza is better than at home. We will be going there again.

We are adapting fairly quickly here. Joey actually went to sleep at his normal bedtime hour. Hopefully he doesn't wake up at 3am.

Everything is very inexpensive here, except for American food and supplies. One of our friends bought a can of AW Root Beer and it cost him $9. They do not have to go boxes. Everything is just put in plastic bags. Cars have the right of way and kids don't wear diapers, they pee and poop in the streets. Although the streets are very clean, go figure. Locust buzz in the trees and it sounds like live electricity. People stare like crazy at us. Many have never seen Americans before. The hospital staff is super nice and helpful. Everyone wants to help always.

Well that's about it for now. Joey has more therapy the next 2  1/2 days and then a Spinal injection on Friday.

I have posted videos and some pics on www.dropshots.com/fightingjoey

Schedule for the Week

We just received Joey's schedule for the week. It looks like the following:

Monday - IV Injection 4pm

Tuesday, Wednesday and Thursday - 8:30 - 10 Dr. visits

                                                                       10:15-11 PT

11-11:30 Standing Therapy

1:30-2:15 PT

4-4:20 Electric Wave Therapy (OT)

4:25-4:45 Acupressure (OT)

Friday- 8:30-10 Dr. Visits

               10:15-11 PT

                11-11:30 Standing Therapy

1:30 - Spinal Injection ( he can't eat 6 hrs before and 4 hrs after and has to lay on his back for 6 hrs after, I                                                                         don't know how I'm going to manage that)

Saturday and Sunday are our free days to sight see.

I'm very excited about our schedule. We will get a new schedule every week.

Bye for now.